Frequently Asked Questions
What is a Palliative Care Register?
Advance Care Planning
Advance Care Planning (also known as Future Care Planning) is a way to think ahead, to describe what matters to you and to ensure that other people know your wishes and preferences for the future. It’s about helping you to live well, right to the end of your life. Thinking ahead, discussing with others and writing things down means that your wishes are known and respected. So, if you become unwell, or can no longer speak for yourself, you are more likely to receive the kind of care you want in the place you choose.
View our page on Advance Care Planning for more information.
Community Support
The best way to find community support for end of life care in your area is to contact your local Primary Care Centre/Medical Practice (GP practice) who can provide information about available hospice services, community nurses, and support groups in your region; you can also ask your local social services department or go online to look for local services from national charities such as Marie Curie, Hospice UK, or Macmillan Cancer Support.
Bereavement Support
There are lots of ways to get support for bereavement, but it’s not always easy to find the right support for you. You may need to reach out to several organisations before you find the right approach for you.
Your local primary care centre, your council and national charities can provide you with local support services information. Alternatively, you may wish to search for online support.
Helpful websites
AtaLoss: Helping bereaved people find support and wellbeing:https://www.ataloss.org/
Alzheimers Society: https://www.alzheimers.org.uk/
Carers Trust: https://www.carers.org
Carers UK: https://www.carersuk.org or http://www.carersuk.org/forum (online discussion forum)
Citizens Advice: www.citizensadvice.org.uk
Cruse Bereavement Care: https://www.cruse.org.uk
Hospice UK: https://www.hospiceuk.org
Lasting Power of Attorney information can be found at: https://www.gov.uk/power-of-attorney
Marie Curie: https://www.mariecurie.org.uk
Macmillan Cancer Support: https://www.macmillan.org.uk/ or https://www.macmillan.org.uk/cancer-information-and-support/advanced-cancer/care-and-support-if-you-have-advanced-cancer
Sue Ryder Bereavement Online Support:https://www.sueryder.org/grief-support/online-bereavement-support/
Speak for me: https://speakforme.co.uk/
The Care Worker’s Charity – dedicated to advancing the financial, professional, and mental well-being of care workers across the UK: https://www.thecareworkerscharity.org.uk/
