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Enabling a gold standard of care for all people nearing the end of life

Other GSF Cited Articles

Primary Care

  • Daniel Munday and Jeremy Dale, Palliative care in the community BMJ, Apr 2007; 334: 809 - 810 ; doi:10.1136/bmj.39174.605081.80
  • Dan Munday, Cathy Shipman, Continuity in Palliative Care, Key Issues and Perspectives RCGP 2007 ISBN 978-0-85084-311-8, Chapter 11 page 200-210
  • J Boyden, B Edwards The Advanced Practitioner Role in a Community Twilight Service: January 2007 Volume 21, Issue 01- Journal Articles - jcn.co.uk
  • J. Wong, S. Hall, W. Finegan, L. Holmberg The role of the primary-care physician in oncology care. The Lancet Oncology, Volume 6, Issue 2, Pages 118-122
  • Daniel Munday, Kashifa Mahmood, Jeremy Dale, Nigel King Facilitating good process in primary palliative care: does the Gold Standards Framework enable quality performance? The Author 2007. Published by Oxford University Press. doi:10.1093/fampra/cmm045
  • Developing primary palliative care Completion of community palliative care management form should be mandatory BMJ 2005;330:42 (1 January), doi:10.1136/bmj.330.7481.42
  • Scott A Murray, Kirsty Boyd and Aziz Sheikh, Developing Primary Palliative Care: Primary Palliative Care Services Must be Better Funded by Both Day and Night BMJ, Mar 2005; 330: 671; doi: 10.1136/bmj.330.7492.671-a
  • Julia Riley, Developing Primary Palliative Care: Completion of Community Palliative Care Management Form Should be Mandatory BMJ, Jan 2005; 330: 42; doi: 10.1136/bmj.330.7481.42
  • Colin I Guthrie Developing primary palliative care Changed role of general practitioners has been taken into account BMJ. 2005 January 1; 330 (7481): 42. doi: 10.1136/bmj.330.7481.42-a.
  • Sarah Barnes, Merryn Gott, Sheila Payne, David Seamark, Chris Parker, Salah Gariballa, Neil Small Communication in heart failure: perspectives from older people and primary care professionals Health Social Care in the Community Vol. 14 Issue 6 Page 482 November 2006
  • Lorraine Holtslander The experience of hope for informal caregivers of palliative home care patients: a grounded theory exploration Thesis Submitted to the College of Graduate Studies and Research In Partial Fulfilment of the Requirements For the Degree of Master of Nursing In the College of Nursing University of Saskatchewan, November, 2004.
  • Jenni Burt, Cathy Shipman, Stephen Barclay, Nigel Marshall, Amanda Stimson, Jason Young Continuity within primary palliative care: an audit of general practice out-of-hours co-operatives Journal of Public Health 2004 26(3):275-276; doi:10.1093/pubmed/fdh161 Journal of Public Health 26(3) © Faculty of Public Health 2004
  • M Petrova, J Dale, D Munday, J Koistinen, S Agarwal, R Lall, The role and impact of facilitators in primary care: findings from the implementation of the Gold Standards Framework for palliative care © The Author 2009. Published by Oxford University Press. All rights reserved. For permissions, please email: journals.permissions@oxfordjournals.org doi: 10.1093/fampra/cmp066 Pages 1-10
  • Patient's Experience of Receiving GSF-led primary palliative care, Sarah Kelt, Daniel Munday, Jeremy Dale, End of Life Care 2008 Vol 2 No 4 pages 47 to 53
  • Interprofessional relationships and communication in primary palliative care: impact of the Gold Standards Framework, Mahmood-Yousuf K, Munday D, King N, Dale J British Journal of General Practice, April 2008 pages 256 to 263
  • The Gold Standards Framework for palliative care in the community, Pharmaceutical Journal, Mar 25, 2006; 276(7393): 353-4
  • Letter - Completion of community palliative care management form should be mandatory, BMJ 2005; 330:42 (1 Jan), doi: 10.1136/bmj.330.7481.42
  • Letter - Developing primary palliative care, Primary palliatiev care services must be better funded by both day and night, BMJ 2005; 330:671 (19 March), doi:10.1136/bmj.330.7492.671-a
  • Gold standards palliative care in the community, Melvin J, Primary Health Care, 2003 Sep; 13(7): 39-41 (13 ref) $It's time to develop primary care services for the dying, Murray S, Mitchell G, Burge F, Barnard A, Nowels D, Charlton R, Journal of Palliative Care. Vol 22(2) Sum 2006, 115-116
  • Improving the care of dying patients in the community, Tapsfield A, Nursing Times. 102(35): 28-30, 2006 29Sept 4 $Letter - In Search of a good death, Primary healthcare teams work in new framework for better care of the dying at home, BMJ 2003; 327:223 (26 July), doi: 10.1136/bmj.327.7408.223-a

Care Homes

  • Froggatt, Katherine; Payne, Sheila (2006) A survey of end-of-life care in care homes: issues of definition and practice Blackwell Publishing Volume 14, Number 4, July 2006 , pp. 341-348(8)
  • The Challenges in adopting care pathways for the dying for use in care homes, Partington L, International Journale of Older People Nursing. Vol 1(1) Mar 2006, 51-55
  • Choice over care at the end of life': Implications of the End of Life Care Initiative for older people in care homes, Froggatt K, Journal of Research in Nursing, vol 10, no 2, pp 189-202, March 2005 ppier Endings, Davis C, Nursing Standard 2006, 11 Jan. 20(18). pp 20-5

Hospital

Dementia

  • Julian C. Hughes, David Jolley, Alice Jordan & Elizabeth L. Sampson Palliative care in dementia: issues and evidence Advances in Psychiatric Treatment (2007), vol. 13, 251–260 doi: 10.1192/apt.bp.106.003442
  • Dementia A NICE–SCIE Guideline on supporting people with dementia and their carers in health and social care ANS Guideline - bps.org.uk © The British Psychological Society & The Royal College of Psychiatrists, 2007
  • Louise Robinson, Julian Hughes, Sarah Daley, John Keady, Clive Ballard, Ladislav Volicer End-of-life care and dementia Reviews in Clinical Gerontology (2005), 15: 135-148 Cambridge University Press doi:10.1017/S0959259806001833

Advance Care Planning

  • Advance Care Planning in primary care - uncomfortable, but likely to engender hope rather than dispel it, BMJ Vol 333 28 Oct 06 pg 868-869

Other

  • The Times article Terminally ill ‘unable to die at home through lack of nursing cover’ March 1, 2010 David Rose, Health Correspondent accessed 3/3/2010 http://www.timesonline.co.uk/tol/life_and_style/health/article7044550.ece
  • Sydney Dy and Joanne Lynn Getting Services Right for those Sick Enough to Die BMJ, Mar 2007; 334: 511-513; doi: 10.1136/bmj.39127.653704.80 Fiona Godlee Straight Thinking, BMJ, April 2007; 334: 0; doi 10.1136/bmj, 39189.594178.BD
  • G. Dickinson, D. Clark, M. Sque Palliative care and end of life issues in UK pre-registration, undergraduate nursing programmes. Nurse Education Today Nurse Education Today 2007 Apr 21
  • Griffiths Jane; Ewing Gail; Rogers Margaret; Barclay Stephen; Martin Anna; McCabe Janet; Todd Chris (2007) Supporting Cancer Patients With Palliative Care Needs: District Nurses' Role Perceptions. Cancer Nursing. 30(2):156-162, (C) 2007 Lippincott Williams & Wilkins, Inc
  • Barbara Monroe, Penny Hansford, Malcolm Payne, Nigel Sykes OMEGA: The Journal of Death and Dying Volume 56, Number 1 / 2007-2008, Pages: 63 - 75 Special Issue: "Hospice Heritage" In Memory of Dame Cicely Saunders Guest Editor(s): Colin Murray Parkes Published Online: 24 September 2007 St Christopher's and the Future
  • Jacqueline Riley; Gaynor Fenton A terminal diagnosis: The carers' perspective DOI: 10.1080/14733140701327909 Counselling and Psychotherapy Research, Volume 7, Issue 2 June 2007 , pages 86 - 91
  • Dorry McLaughlin, Kate Sullivan, Felicity Hasson Hospice at Home service: the carer’s perspective Journal Supportive Care in Cancer ISSN 0941-4355 (Print) 1433-7339 (Online) Issue Volume 15, Number 2 / February, 2007 DOI 10.1007/s00520-006-0110-1 Pages 163-170
  • Maggie Evans, Alison Shaw, Elizabeth A Thompson, Stephen Falk, Pat Turton, Trevor Thompson, Deborah Sharp Decisions to use complementary and alternative medicine (CAM) by male cancer patients: information-seeking roles and types of evidence used BMC Complementary and Alternative Medicine 2007, 7:25 doi:10.1186/1472-6882-7-25 This article is available from: http://www.biomedcentral.com/1472-6882/7/25
  • Modelling services to meet the palliative care needs of chronic heart failure patients and their families: current practice in the UK Selman et al. Palliat Med.2007; 21: 385-390
  • Tools to improve end of life care for neurological patients, Byrne J, Beety D, Br J Neuroscience Nursing. 2007 11 May. 3(5) pp 190-3
  • Thinking beyond cancer: neurological palliative care, Byrne J, Nursing & Residential Care. 2007 Jul. 9(7). Pp 314-6 David A Seamark, Clare J
  • Seamark, David M G Halpin (2007) Palliative care in chronic obstructive pulmonary disease: a review for clinicians J R Soc Med 2007;100:225-233
  • An introduction to the NHS End of Life Care Programme, Henry C, Fenner P, End of Life Care 2007 Mar 1 (1) pp 56-60
  • Review of Caring for the Dying at Home; Companions to the Journey, Linden D, Psycho-Oncology Vol 15 (12) Dec 2006 1099
  • Reaching for gold, Meehan H, Nursing Standard 2007 Jan 11-17; 20 (18): 22-3
  • Slipping Away, Nursing Older People. 2006 Aug, 18(7). Pp 6-7
  • Times are changing for palliative care, Cancer Nursing Practice, 2003 Jun, 2(5). Pp 15-7
  • Barbara Gomes and Irene J Higginson Factors Influencing Death at Home in Terminally Ill Patients with Cancer: Systematic Review, BMJ, Mar 2006; 332: 515-521; doi: 10.1136/bmj.38740.614954.55
  • D Jeffrey (2006) Patient-Centred Ethics and Communication at the End of Life Radcliffe Medical Press Product Id: 56650
  • Croucher Delivering End of Life Care in Housing with Care Settings Housing Learning & Improvement Network 2006 Factsheet No 18 - cat.csip.org.uk
  • Abbey, Jennifer and Froggatt, KA and Parker, Deborah and Abbey, Brian (2006) Palliative care in long term care: a system in change. International Journal of Older People Nursing 1(1):pp. 56-63. Copyright 2006 Blackwell Accessed from: https://eprints.qut.edu.au/secure/00003616/02/PD3_- _Palliative_Care_(Revised).doc
  • Barbara Gomes and Irene J Higginson Factors influencing death at home in terminally ill patients with cancer: systematic review BMJ 2006;332;515-521; originally published online 8 Feb 2006; doi:10.1136/bmj.38740.614954.55 $Scott A Murray, Kirsty Boyd and Aziz Sheikh Palliative care in chronic illness BMJ 2005;330;611-612 doi:10.1136/bmj.330.7492.611
  • C Lewis, B Stephens Improving palliative care provision for patients with heart failure - British Journal of Nursing, 2005 - internurse.com
  • Levin, R Teaching Evidence-Based Practice in Nursing: A Guide for Academic and Clinical Settings (2005) Springer Publishing Company, Incorporated Product Id: 54089
  • Christiane Rehwagen, Older People are Wrongly Excluded from Drug Trials BMJ, Dec 2005; 331: 1360; doi: 10.1136/bmj.331.7529.1360-c
  • JE Ellershaw, D Murphy The Liverpool Care Pathway (LCP) influencing the UK national agenda on care of the dying - International Journal of Palliative Nursing, 2005 March; 11(3):132-4
  • Katherine Froggatt (2005) ‘Choice over care at the end of life’ Journal of Research in Nursing, Vol. 10, No. 2, 189-202 DOI: 10.1177/174498710501000205 © 2005 SAGE Publications
  • Supportive and Palliative Care for Adults. A Strategy for North Staffordshire 2005-2010 Produced By North Staffordshire Palliative Care Strategy Implementation Group. August 2005
  • David Clark, Christine Ingleton, Philippa Hughes, Tom Yap, Bill Noble (2004) Evaluation of a scheme to enhance palliative cancer care in rural Wales Supportive Care in Cancer Volume 12, Number 10 / October, 2004 doi: 10.1007/s00520-004-0673-7 pg 683-691
  • Sarah Barnes, Merryn Gott, Sheila Payne, Chris Parker, David Seamark, Salah Gariballa, Neil Small Recruiting older people into a large, community-based study of heart failure Chronic Illness, Vol. 1, No. 4, 321-329 (2005) DOI: 10.1177/17423953050010040201 © 2005 SAGE Publications
  • Pam Levack Developing primary palliative care Community palliative care services are not sufficiently funded BMJ. 2005 January 1; 330(7481): 42–43. doi: 10.1136/bmj.330.7481.42-b. Copyright © 2005
  • Witter P (2005) The district nurse’s role in managing patients with heart failure Nursing Standard. 19, 24, 38-42. Date of acceptance: August 26 2004.
  • Collins, F. (2004) "Using 'gold standards' to raise awareness of palliative care" Nurs Times 100 (48):30-1
  • R Lehman How long can I go on like this? Dying from cardiorespiratory disease - Br J Gen Pract, 2004 - pubmedcentral.nih.gov
  • Psychosocial End of Life Care University of Hertfordshire, School of Nursing and Midwifery L Activities - perseus.herts.ac.uk ref
  • D Seamark Caring for the Dying at Home - Journal of the Royal Society of Medicine, 2003 - Royal Soc Med K
  • John Ellershaw, Chris Ward (2003) Care of the dying patient: the last hours or days of life BMJ 2003;326:30-34 (4 January)
  • D Maher, L Hemming Understanding patient and family: holistic assessment in palliative care- British Journal of Community Nursing, 2002 - internurse.com
  • Core Action Team, Do Once and Share Complex Conditions in Later Life C Pathway - cpa.org.uk
  • Scott A Murray, Marilyn Kendall, Kirsty Boyd, Aziz Sheikh (2005) Illness trajectories and palliative care BMJ 2005;330:1007-1011 (30 April), doi:10.1136/bmj.330.7498.1007
  • Alfredo A Espinosa-Roca Where patients with cancer die in Cuba BMJ. 2006 March 18; 332(7542): 668. doi: 10.1136/bmj.332.7542.668.
  • de Haes, Hanneke a; Teunissen, Saskia b Communication in palliative care: a review of recent literature. Supportive care Current Opinion in Oncology. 17(4):345-350, July 2005.
  • Merryn Gott, Sarah Barnes, Chris Parker, Sheila Payne, David Seamark, Salah Gariballa, Neil Small Dying trajectories in heart failure Palliative Medicine, Vol. 21, No. 2, 95-99 (2007) DOI: 10.1177/0269216307076348 © 2007 SAGE Publications
  • Andershed, Birgitta Relatives in end-of-life care - part 1: a systematic review of the literature the five last years, January 1999-February 2004 Journal of Clinical Nursing, Volume 15, Number 9, September 2006, pp. 1158-1169(12) Publisher: Blackwell Publishing
  • Cancer Care. Palliative Care. The last days of care, Bryan J, Health Service Journal. 2004 25; 114(5933): suppl 10-1