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Enabling a gold standard of care for all people nearing the end of life

Why Gold?

The name 'Gold Standards Framework' developed following discussion as to what best care would look like for people nearing the end of life, the ‘gold standard’ of care, and what is required to achieve this. Since then, the word ‘gold’ has come to symbolises an aspiration to best care for these most important of people, and an affirmation that, despite the busy pace of life, that many feel this is very important work that should be prioritised above all others - it is a matter of life and death.

We aspire to a gold standard of care for all patients at all times, in the knowledge that in the real world, we will sometimes fall short as we run into problems. But unless we are clear as to the best we can aim for, we may not improve at all.

We think that patients who are approaching the end of life, above all others, deserve the best we can offer! Many patients, when told they are now included in the Gold Standards Framework, just hear the word 'gold' and this in itself encourages them that their team are aiming for the best supportive care that can be provided, despite maybe hearing from others that 'there is nothing more we can do for you'. They are sometimes known as 'gold patients', which enables them to receive prioritised care at the most important time.

  • Patients know they are on the 'Gold Register'
  • It implies best care, at a time when most support is needed
  • It is encouraging when there may be so much bad news
  • This supports the family and carers too
  • Some have other Gold examples eg a gold card or a ‘gold passport’ telling others of their choices, preference and contact details, a ‘Gold-line’ to phone, a gold bracelet on admission, a home pack with useful local resources, access to carers support etc. Please let us know of any other ideas you have to affirm and enable patients on the GSF register receive best care.

Gold Patient

The general public is increasingly aware of end of life issues. The GSF team now recommend that, in general, patients are told when they are added to the end of life register that they are 'Gold' patients. This should be done sensitively but it should be part of the systematic approach that means they are offered an advance care planning discussion and care plan. They should also be told of the benefits of being a 'Gold' patient. For example practices may offer a quicker prescription turnaround or ask less questions if a visit is requested, and out of hours services will be aware of their condition and may be able to give them priority.

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